Resources

a photo of a newborn infant wearing a pink knit hat
a logo image of baby's first steps

Baby’s First Test houses the nation’s educational resource center for newborn screening. It informs and empowers families and healthcare providers throughout the newborn screening experience. By increasing awareness, Baby’s First Test offers millions of newborns and their families a chance at a healthy start. Read more at Baby’s First Test

a logo image of genetic brilliance

Genetic Alliance is one of the world’s leading nonprofit health advocacy organizations. We engage individuals, families, and communities to transform health. Trying to find information and interventions for disease, searching for health information, and/or trying to find ways to participate in research is difficult. We create ways to make it easier to find or build solutions in health services and research. Read more at Genetic Alliance

image march of dimes logo

Premature birth is a complex problem with no single solution. About 380,000 babies are born prematurely each year in the United States. In about half of cases, the cause is unknown. March of Dimes researchers are seeking the causes of prematurity as a step toward developing ways to prevent it. Since 2003, our fight to save babies has been strongly characterized by our Prematurity Campaign. The rising incidence of premature birth has demanded action, and the March of Dimes has responded by initiating an intensive, multi-year campaign to raise awareness and find the causes of prematurity. Read more at March of Dimes